The Kaiser Family
Fund A Cure Family
September 13, 2023 – the day I went from being a regular 7th grader with all the regular 7th grade challenges to a type 1 diabetic with all of the type 1 challenges and the 7th grade ones too. Everyone thought I was just being a normal teenager because I was tired, sleeping late, grumpy and hungry…sleeping the hot Arkansas summer days away and drinking tons of water. But, something had changed. I’m a competitive swimmer, but all of my endurance and energy disappeared. My mom, who just so happens to be a pediatric nurse, started to put the pieces of the puzzle together: tired, cranky, always thirsty and the final piece was noticeable weight loss. She ordered a home glucometer to check my blood sugar. We talked about a normal blood sugar range being around 100 – 115. That evening, sitting at the kitchen table, mine tested at 278…two hours after swim practice.
The impact was immediate. I started crying while the number 278 glared at me. My mom was frantically working to find a place for my younger sister to go (and take the dog with her) so we could get to Children’s Hospital. She knew we were in for a long night, which turned into several really long days. That is when the real fun began…and my fear of needles became an even bigger challenge. After starting an IV and drawing labs, my A1C came back as 14 (A1C is a blood test that represents your average blood sugar levels over the last two to three months) and normal range for a non-diabetic is below 5.7. With mine being so high, it meant my pancreas had stopped working back in the summer, but didn’t show signs until late August. My body used my muscles as fuel which is why I was so tired and lost so much weight. There were other symptoms that I had hidden from my parents because I was embarrassed, but this led me to learn how important it is to share these things with them.
There are many lows and highs (get it?) to having diabetes. The lows…so many new things to learn that it gets hard to keep track of: ratios, carb counting, injections, ketones, and CGMs to name a few. On top of that, now I couldn’t eat like a normal teen at a sleepover or birthday party, normal kid stuff. Remember that I hate needles…just didn’t want you to forget, and now I have an embarrassing alarm that goes off while I’m in school because my sugar is too low or too high. Now, let’s talk about the highs, not just my blood sugar after I eat a spoonful of cookie dough when I’m baking (I make the best chocolate chip cookies…it’s not bragging if it’s a fact). I’ve become more resilient and, as my mom reminds me, I can do hard things. I’ve qualified for and competed in NCSA Nationals in Orlando in 2024 and was the fastest 200 Butterflyer in the state of Arkansas last year. It’s harder having to manage my diet between daily 2-hour practices and weekend-long competitions, but proving to myself that I didn’t lose that part of me was really important.
Breakthrough T1D has created a community for me and my family. I was excited to come back as an ambassador and immediately texted the friends I made last year to see if they were coming back as well. We swap stories and jokes only teens with diabetes understand. Believe me, it’s needed. I know it’s part of me, and I have gotten used to the idea, but sometimes it just hits me…This is my life. But without Type 1, I wouldn’t have met new friends or been able to help many others with these same challenges. Thanks to my endocrinologist, I am interested in pursuing a career in the medical field and have already started planning with my high school counselor. Finally, thanks to the donations, research, and breakthroughs, this lifelong disease is manageable for me.
This year, my family and I are proud to be the Fund A Cure Family for this year’s Breakthrough T1D “Party with a Purpose” Gala. I hope you will join us, and my friends, at Osage House Hall on Saturday, April 26th. Through awareness and your donations, we will find a cure. All donations and ticket purchases can be made via the QR code included, at the website listed below, or mail your donation to Breakthrough T1D, Kaiser FAC, PO Box 1560, Hagerstown, MD 21741. We are grateful for your commitment to a Fund A Cure gift!
To make a Fund A Cure gift in honor of the Kaiser Family, please visit https://www.breakthrought1d.org/southernstates/events/kaiser